May 16, 2019 our 4 year old, Kalea Rose, was diagnosed with Moyamoya Disease (a rare brain disease). Consistent with our fears, following a MRI, the neurologist called with the news that our "intuitions were correct". We took a deep breath, and trusted Dr. Smith's knowledge, expertise, experience, and abilities to lead us through Kalea's treatment. We've never looked back or doubted our choice of doctor or hospital. June 2019 she underwent her first surgery, December 2020 she had her second, & August 2021 she had her third.
Thankfully the multiple surgeries has helped, but unfortunately her fight has not. With any progressive disease without a cure, she will be continually dealing with its effects on her body. We're determined to pay forward the fundraising that has benefitted our daughter and so many others. We are grateful for all that her medical team has done for her. We are happy we can host this event annually to help fund research directly to their advances.
100% of donations received through our fundraising website (our event donations & contributions, & checks passed to us as well) go directly into Dr. Ed Smith's trust benefitting Moyamoya research at Boston Children's Hospital.
