Step by Step: 638km for Pediatric Movement Disorders

Raised So Far: $5

Fundraising Goal: $125,000


Why we fundraise for Boston Children's Hospital

Team Roster Amount Raised

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Fundraise Your Way 2024-2025

Step by Step: 638km for Pediatric Movement Disorders

We are fundraising through “Step by Step: 638 km for Pediatric Movement Disorders” to support the incredible work happening in the Ebrahimi-Fakhari Laboratory and the Movement Disorders Program at Boston Children’s Hospital and Harvard Medical School. During the month of May, our team will run 638 kilometers in honor of the 638 patients enrolled in our Registry History Study for Hereditary Spastic Paraplegia!
Every dollar raised supports our basic science, clinical, and translational research into rare pediatric movement disorders, helps families facing life-altering diagnoses, and fuels innovative treatments that children can’t find anywhere else.
Your gift will:
  • Advance cutting-edge research into genetic movement disorders like Hereditary Spastic Paraplegia, epilepsy-dyskinesia syndromes, and complex pediatric movement disorders;
  • Support the Ebrahimi-Fakhari Lab’s mission to improve care for children worldwide;
  • Empower the next generation of clinical researchers and pediatric neurologists to carry this work forward.
Please consider supporting our 638 km challenge — step by step, we can make a difference for children and families affected by rare movement disorders.

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