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Shwachman-Diamond Syndrome Registry

Donations to the SDS Registry have helped move SDS from an obscure disease to a condition with medical options to prevent and treat complications. When you donate to the SDS Registry, your donations also impact lives more broadly. For example, key discoveries from the SDS Registry identified similarities between SDS and high risk leukemias which affect millions of children and adults.

The SDS Registry engages the SDS community and expert researchers to accelerate the pace of discovery for treatments and therapies of SDS. The Registry provides a resource of clinical expertise for patients, families, and doctors, and continues to lead innovative and impactful research on SDS.

Use this portal, provided by the Boston Children’s Hospital Trust, to ensure that your donations are directed to the SDS Registry.

All donations are tax deductible. Our tax identification number is 04-277-4441.

For more information about the SDS Registry's research efforts, please visit our

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