It is with immense gratitude that I tackle the 2025 Boston Marathon on behalf of the most remarkable little girl, Molly Robinson, her family and Boston Children's Hospital. The Robinson family has showed up with relentless love and support for our family during life's most challenging season, all while navigating their very own with Molly. It is because of the care at BCH that Molly has grown into a strong, independent little girl who is showing the world that “she can”.
Molly was born with a condition called autosomal recessive primary microcephaly-a rare genetic mutation on her ASPM gene. Her diagnosis was not known until birth and there were a lot of unknowns upon the initial diagnosis. In addition, Molly was also born with a condition called Homozygous familial hypercholesterolemia (HoFH). HoFH is a genetic cholesterol disorder where her liver is unable to process LDL cholesterol and places her at risk for a cardiac event if not controlled.
Molly’s early journey with Boston Children’s Hospital started with neurology and the gastroenterology department’s, (eventually moving to cardiology) as Molly’s condition made it very difficult for her to eat. She was admitted inpatient for a number of days when she was 4 months old due to dehydration and a NG tube was placed to help aid with her nutrition intake. Additionally, Molly has a 50% blockage in her right coronary artery and has been on medication to control her condition since she was 4 months old. Today, she receives a monthly infusion at BCH. Molly has had numerous challenges since her diagnosis, but she continues to break down barriers and thrive as the little warrior that she is.
I’m humbled not only by Molly’s strength and courage, but even more, her joy. She is truly a light in this world. Please support my fundraising efforts to impact the unrivaled care that BCH provides to patients and families like Molly and the Robinson’s.