Dear Family and Friends
Well, it's hard to believe that I'm at this again....but I am so honored to say that I've been chosen to run the New York City Marathon to support Boston Children’s Hospital!
As many of you know I've run the Boston Marathon for the past four years for the Credit Unions Kids@Heart team that supports research at Boston Children's. Running New York will be a change but I'm ready for it, and so happy to be able to continue to raise money for such an incredible institution.
I'm also excited to say that I have once again been given the incredible opportunity to run for an amazing young man my patient partner Sammy! Sammy is now a full fledged teenager he is 13! He is the sweetest boy I have ever met. His parents April and Alain and his lovely grandparents are such wonderful people and I’m so happy they have come into my life. When I was considering running New York this year I wanted to be sure that I could run for Sammy. He is my inspiration my reason why, and I'm so happy his family is allowing me to partner with him once more.
Sammy has Cornelia de Lange Syndrome. Cornelia de Lange Syndrome is a genetic birth defect that affects roughly 1 in 10,000 kids. Sammy has many of the same issues as other kids with this syndrome. He is small for his age; he has limb deficiency in his arms, moderate hearing loss, some developmental delays, and is unable to walk, or talk. In addition, he is more susceptible to seizures. Sammy sees many specialists at Boston Children’s Hospital, and has spent weeks at a time there, on occasion. So the hospital is so important to he and his family.
It's important to note that no administrative fees are taken when making donations to the hospital, 100% of the money goes directly to patient care and comforts.
Thank you for taking the time to read about my run. I thank you all so much for your past generosity and hope that you will consider making a donation to this amazing institution.