I will be running my 21st Boston Marathon this year and celebrating 16 years of friendship my patient partner Will Ward and his fabulous family. Will is 20 years old. When Will was four weeks old, doctors discovered Will has myotubular myopathy (MTM). MTM greatly impacts Will's muscles and he needs the assistance of a tracheotomy and ventilator to breathe, and a power wheelchair for mobility. Although Will is unable to vocalize, his smiles speak volumes. Will communicates with his sweet smiles, uses assistive technology, and his sense of humor shines through loud and clear. I have run the Boston Marathon since 2006 in honor of Will and in memory of Steve Burton with Miles for Miracles. The hospital pairs a child patient with a runner as a part of the program. Steve, my former running coach, and friend was paired with Will in 2004. In 2006, Steve was too ill with cancer to run for Will and did not want to disappoint Will. I offered to run for Will for Steve. Sadly, Steve passed away a few short weeks after the marathon. The funds I raise through running the Boston Marathon go to benefit the Beggs Lab Congenital Myopathy Research Fund at Children’s Hospital. Beggs is leading the research for MTM. Dr. Beggs' research has laid the foundation for two very promising treatments being pursued for MTM which are in clinical trials.