The Boston Marathon takes place on April 15, 2019 and we are so excited that one great athlete is running on Luc's behalf! On Marathon Monday, it will be exactly 4 years since Luc was diagnosed with atypical hemolytic uremic syndrome, aHUS, an ultra rare genetic blood disease. It came out of the blue, he was healthy one day and very very sick the next. We are so lucky because unlike a lot of rare diseases, he was diagnosed and treated quickly. Also, unlike so many people with a rare disease, Luc has a medicine that works. Every 14 days, he goes to Children's to get his treatment and as a result, he is able to live the life of a normal 12 year old, with no restrictions or limitations or side effects. It's all quite miraculous and we are grateful every day. We are especially grateful that Boston Children's Hospital takes such amazing care of him. Having a sick child is one of life's great equalizers, and it's very humbling and heart breaking to not be able to make your child well or have answers. Great medical care and a loving supportive staff is what a family desperately needs. As a result, we have teamed with Children's and a runner to raise money for the hospital. We are proud to be part of the Miles for Miracles team because we believe so strongly in all of the amazing work Boston Children’s Hospital does for kids and their families:
- Children from all over the world find hope and healing through 258 clinical programs—more expertise than any other pediatric hospital in the world.
- Patient families find support, from big needs like temporary housing steps from the hospital to small kindnesses that relieve stress.
- More than 1,400 researchers find solutions others can’t through lifesaving discoveries that are shared with the world.
Simply put: Boston Children’s works to give every child a healthy future. You can help turn the miles of Luc's runners into miracles for kids. Please give today. Thank you all so much.
The Bannerman Family