Hello! If you have been to my page before-Thank YOU again for your generosity! If you are new to this page-welcome and Thank YOU in advance for your support. My name is Stephanie and I am proud to be running in the 2021 Boston Marathon for Boston Children's Hospital for the Credit Unions Kids at Heart Team (CUK@H). This will be my third year on the CUK@H Team and our small but mighty crew of 8 runners will be a part of the larger Miles for Miracles team. Collaboratively, we are all here to raise funds for Boston Children's Hospital (BCH) and help children lead happy and healthy lives.
Credit Unions Kids at Heart is a collaborative charitable organization of the credit union community throughout New England. Together, money is raised for research aimed at the prevention, treatment, and one day, cure of pediatric neurological disorders. 100% of funds raised by CUK@H goes directly to medical research, clinical trials and treatments performed at Boston Children's Hospital and in partnership with their research affiliates. There is ZERO overhead costs with your donation. Boston Children's Hospital has been leading the way in superior innovations in treatment and care for over 150 years. We are proud to partner with their world-class research enterprise to help make their important discoveries and innovations available to children worldwide.
This year I am proud to partner again with a resilient young boy named Everett. Everett is almost 17 years old and has been a part of the CUK@H team for over 10 years now. He loves being outdoors and on the move-whether it is on swings, walks or swimming. Everett also loves going to school and has been using a Tobii communication device to express himself more. Most recently, he told one of his teachers to be quiet, and that got a lot of laughs. Everett's diagnoses include Atypical Menkes syndrome (a rare copper deficiency), epilepsy, severe osteoporosis, bladder and kidney issues, and obstructive sleep apnea. He receives treatment and support from various departments at Boston Children's Hospital aiding in his overall care and well-being. Him and his mom, Michele, are the biggest supporters of us runners-whether it is on the course or at fundraising events.
When the B.A.A. turned the 2020 Boston Marathon into a Virtual Event, it was especially upsetting for patient partners like Everett who looked so forward to the event and cheering their runners on. During the summer of 2020, Everett and I did not get to join forces in any in-person fundraising events or practice runs not only because of the pandemic- Everett also broke his femur last summer! Unfortunately, he did not heal as quickly and spent most of his summer stuck inside without much change of scenery. As I planned for a not-so-virtual 26.2 (still ran the mileage just not on the Boston Marathon Course), Michele and I knew we had to get Everett involved somehow. Running 26.2 miles through Bedford, Merrimack, and Nashua, New Hampshire proved to be the most rewarding when I crossed the make-shift finish line and Everett was there! Despite his broken femur, despite the pandemic and despite the cancellation of the in-person Boston marathon there was nothing getting in our way. Resilience and perseverance-that is what Everett and the other children on the CUK@H team and patients at BCH display day in and day out. That is why I run Boston and that is what makes the entire experience so worthwhile each and every year.
Thank you for supporting my run but most importantly, thank YOU for supporting these kids and this incredible charity. One Mission- to help kids lead happy and healthy lives.
To learn more, please visit www.cukidsatheart.org