October 8, 2018 - Meet Frankie!
For those of you who haven't yet been blessed to know this not so little guy, meet my Godson, Frankie. This Superman was born with an extremely rare genetic disorder called Sotos Syndrome. Nothing has been typical for Frankie and nothing has been easy for him or his Family (except loving him to pieces) since the moment he was born. Frankie has endured more appointments, tests, procedures, surgeries, and illnesses than anyone should have to experience in a lifetime. He is fortunate to have amazingly strong parents who fiercely advocate for his needs. Children's Hospital has played a huge part in Frankie's healthcare including life saving treatments after a rare reaction to a bacterial infection. I am constantly inspired by Frankie's strength and determination to overcome all challenges, setbacks, and seemingly insurmountable hurdles. The most amazing thing is how sweet his personality is despite all he faces each and every day. I am so proud of him and his older sister and his Mom and Dad for their unconditional love and tireless efforts to help him achieve his goals every step of the way. I think of them all so often as I run and know that I have so much to be thankful for and no reason at all to give up. #FrankieStrong#FrankieIsAFighter#FrankieIsASuperhero
Please donate to support Children's Hospital and the care they provide to this special little man!
It's Giving Tuesday! November 27, 2019
Wow! I am so overwhelmend and blessed with all of your support so far. Thank you from the bottom of my heart!
I've had the chance to meet a few of my Miles for Miracles Teammates and am already inspired by their stories and their journeys. I know they will play a huge part in my journey to complete 26.2 on April 15th. I am super excited to start our official training next week!
Scroll through my earlier posts below if you would like to know more about my journey and just of few of the reasons why I am running for Boston Children's Hospital.
Thank you for your donations!!! I can't do this without you!!!
November 2, 2018 - Meet Conor (and his "little" brother Kyle)
Conor is my little cousin (actually he is the son of my husband's cousin, but close enough!). Here's what Conor's Mom has to say about him..."Conor was born with a unique chromosome disorder and has needed specialized medical care all his life. We feel very fortunate that Boston Children's Hospital has the Complex Care Service to help coordinate his many specialists and give us a home base pediatrician who really knows what Conor is all about. He's a one-of-a-kind teenager and he deserves a one-of-a-kind hospital." I would add that Conor has a one-of-a-kind family with a one-of-a-kind younger brother and all kinds of extended family support! We have all watched in amazement as they have built their life around protecting him all the while making sure Conor doesn't miss out on ANYTHING!
I spoke with Conor's Mom as part of the process of applying to be part of this team. A couple of things really resonated with me and confirmed that this was the right charity for me to be supporting. She told me that Children's has always treated Conor like a person rather than a specimen and has supported them as a family when planning Conor's care. They have felt empowered to make decisions based upon their own personal values in addition to considering all of the medical options and respected and supported every step of the way.
Please help me make sure that all children and their families receive this special kind of care and donate today.
October 27, 2018 - Meet Evan
I am so proud to be both Aunt and Godmother to this impressive teen. Evan has Autism and is non-verbal, but he is extremely capable of expressing himself in so many ways. A bundle of love since birth, he continues to be super sweet, affectionate, smart, and active despite all the challenges and frustrations he faces every day. At the school where he lives he has learned to enjoy all kinds of food and is known to be very good at cleaning up (two specialties I can relate to!!!) among many other special skills. I don’t get to see Evan as often as I’d like, but I carry him in my heart always. So often when I run I think about Evan, all he has taught me, and all he inspires me to be. Evan knows how to keep everything in its proper place, tirelessly goes after what he wants, enjoys the good stuff in life (including the beach, a personal fave), and most importantly, loves unconditionally.
Evan receives speech augmentation services from Dr. Howard Shane at Children’s Hospital in Waltham. Dr. Shane is also a huge fan of Evan's and was recently featured in a launch video produced by Apple for the iPad for software that Evan has been a part of testing since preschool. Evan's IEP's have included recommendations from Dr. Howard and he has always been available and responsive to Evan's needs during and between his twice yearly appointments.
Please consider donating in honor of Evan and to help make sure all children receive the treatment and care they deserve.
As many of you know, I started this crazy journey called running just over 2 years ago. I was never a runner and never thought that I could be one. This journey has completely changed my life for the better in so many ways. It has always been other people who have inspired me to run and to keep running. They inspire me to get out of bed on the cold dark mornings and the hot muggy ones, too! When I start to feel tired I remember that I really have no concept of what tired really feels like. I think about how they keep going every single day to overcome obstacles and to be the best they can be. They make me stronger and they make me want to be a better person.
To be honest, running a marathon was never a goal for me until very recently. I've never regretted a single run yet have often regretted not taking the opportunity to go for one or for stopping one too soon. I now know if I don't run a marathon it will be something I will always regret, and if I'm going to run a marathon, it just has to be Boston! Growing up going to cheer on runners as they passed through Framingham, raising my own family on the starting line in Hopkinton, having friends and loved ones so close to tragedy the year of the bombings, and hearing the stories from those who have crossed the finish line leave me feeling humbled, honored and excited to have this opportunity.
I am so thrilled and blessed beyond measure to announce that I have joined the Miles for Miracles team because I believe so strongly in all the amazing things Boston Children's Hospital does for kids:
- The hospital's patient care programs are unusually sensitive to what sick and injured children and their families really need.
- Researchers regularly make amazing discoveries that change children's lives.
- Boston Children's welcomes kids whose families can't afford health care--more than any other hospital in Massachusetts.
- Community programs makes a point of reaching out to help low-income and at-risk kids.
And the hospital doesn't just stop there. Boston Children's really understands the importance of training the next generation of top pediatricians and nurses, so they can continue to provide the best, most innovative care possible to kids.
In the coming days I will update my fundraising page to show you some of the special little people who have inspired me along the way, but for now I hope you will support me as I look to take this journey down a path of giving back to others, and support the work of this amazing hospital! I couldn't have come this far without the love and support of my amazing network and I certainly can't do this without you. Please consider making a gift today. Thank you!