I'm running the 2020 Boston Marathon with the Boston Children's Hospital team to raise money for the hospital's Heart Center Extraordinary Needs Fund.
My niece Henley was born a healthy baby early this summer and had no issues during her first week and a half at home. When she went to the ER at 12 days old, my sister Janna and brother-in-law Geordie would not have guessed that she would be listed for a heart transplant just two weeks later. She had contracted enterovirus with resulting myocarditis, which ultimately destroyed the left ventricle of her heart. After months staying in the hospital, Henley is finally home with her parents, but will continue to be an active patient at Children's through adulthood.
While my family was broadly aware of Children's Hospital's top reputation prior to Henley's admission, the quality of care that Henley has received has far surpassed anyone's expectations. From access to specialists, technology, and treatments available almost nowhere else in the world, to the respect, kindness, and dedication that Janna and Geordie have seen from all of the doctors and nurses, Children's has pulled out all the stops to help Henley in every way they can.
What Janna and Geordie have experienced in the first six months of Henley's life is the stuff of nightmares for any parent. I'm hoping that this small contribution to the effort will help. I completed the Vermont City Marathon in 2017, which was supposed to be my first AND last marathon, but this seemed like the perfect challenge for the perfect cause this year, and I'm excited to take it on.
The level of care that Henley is receiving is only possible because of previous donors who gave the money that helped support the research, equipment, innovation, and talent recruitment that saved Henley’s life, and I want to help pay it forward for future patients. My family and I would be extremely grateful for any support that you can give for this endeavor, and we thank you for the time and support. Please help us reach $50,000, our ultimate goal!