I've joined the Miles for Miracles team to help the brave kids at Boston Children's Hospital.
Since Mollys diagnosis in November of 2021 I have been continually striving to find ways to give back to the Rett community. Boston Childrens Hospital is one of 18 hospitals in the US designated to provide the highest level of care for Rett patients. They are also one of three that will be working with the groundbreaking gene therapy trials this year! I am so honored to run for Molly and all those impacted with Rett Syndrome.
A little about our sweet daughter Molly. Molly was diagnosed with Rett in November of 2021. A few things about what Rett is, Rett syndrome is a rare genetic neurological disorder that affects 1 in 10,000 females. Rett syndrome leads to severe impairments, affecting nearly every aspect of life: ability to speak, walk, eat and breathe easily. Rett syndrome is sporadic and randomly occurs due to a mutation in the MECP2 gene. Sweet Molly is a tough cookie and takes all the impairments in stride. She is happy and loving, she gives the best smiles and giggles!
Please support my fundraising and help the incredible kids and families at Boston Children's Hospital Rett Clinic.
