My amazing nephew, Lex, is a patient at Boston Children's Hospital. When Lex was 14 months old, he suffered 4 heart attacks and a stroke. After miraculously surviving (thanks to quick action and CPR by his mother/my sister), we learned he had a very rare, degenerative disease called SMARD1. He needed a tracheostomy to breathe. Doctors in London (where Lex lived at the time) said he wouldn't make it to age 2 and wanted to end his life.
Thankfully, Lex's parents (both neuroscientists) did their own research, and fought hard to get Lex over the US. He may not be able to walk or talk, but Lex is incredible and so full of love! He laughs a lot and brings so much joy to everyone he's around.
Lex (now 6 1/2 years old!) and his parents currently live in Boston, and he is a patient at Boston Children's Hospital. Doctors at BCH are working on ground-breaking treatments for some of his conditions, and Lex continues to beat the odds of his disease.
I am so excited and honored to have been selected as a part of Boston Children's Hospital's Miles for Miracles Team for the 2024 TCS New York City Marathon. I am passionate about helping my incredible nephew Lex and other kids at Boston Children’s Hospital find lifesaving care.
Will you help me reach my fundraising goal with a donation today?
Every dollar I raise funds breakthrough research, family support services, and vital care not covered by insurance through the hospital’s Every Child Fund. Your gift will:
- give children battling the most complex diseases treatments they can’t find anywhere else;
- help children in your town and across the world get a second chance;
- fuel 3,000+ researchers working to find cures;
- help patient-families in crisis with urgent needs, including housing, food and clothing;
- bring crucial care to families through outpatient psychiatry clinics;
- and so much more.
Please support my fundraising—and help the children and families at Boston Children’s and beyond.
