Many of you already know our sweet 2 year old son, Greyson. He was diagnosed with a brain tumor April, 2023 after the onset of seizures, and has been fighting it for the better part of the year. He recently had Neurosurgery in December, 2023 at Boston Children’s Hospital to remove as much tumor as possible, but some remains. Greyson has 7 therapies a week and takes two seizure medications twice a day.
We learned that Greyson has a rare tumor mutation, an FGFR3 mutation, of which, there are no effective treatment options at this time.
The research that Boston Children’s Hospital is doing will directly benefit Greyson’s future treatment options and other children with the FGFR mutation.
The team at BCH has created a research study to assess 10 different FGFR inhibitors in a pre-clinical setting to help narrow down the candidates for further research. This is the first major step in finding a more targeted therapy for the 10-20% of pediatric brain tumor patients with the FGFR mutation. This two-year study will require $300,000 in funding, with $100,000 required to get it started, so that’s where we’re starting.
September 30th, 2024 Update: Our team has raised $227,763!!! The research will be fully funded for one year!! Yay!! Now we need to reach our next goal of 300k to fund the last year of research for the team to finish their work!
Our hope is that we can get Greyson access to a safe and effective treatment option before his tumor takes anything else from him. Greyson has a sweet soul, he loves kitties, picking up leaves and kissing his baby brother.
Thank you for all of your love and support. We are grateful for all that you do and can’t do this without your help.
With love and hope,
The Hawes family.
*You can follow Greyson’s medical journey on FB/instagram. Look up Hope for Grey
