Joey Barone
Raised So Far: $0
Fundraising Goal: $500
Why I fundraise for Boston Children's Hospital
Help Us Support Joey and Children Like Him
As many of you know, our sweet Joey was diagnosed with SPG50 — a rare, progressive neurodegenerative movement disorder . It’s a life-changing condition, and unfortunately, research on SPG50 is extremely limited.
We’re incredibly grateful to Boston Children’s Hospital, the only institution that has conducted research on Joey’s condition. Their support has given us hope, and now we’re asking for your help to keep that hope alive — not just for Joey, but for other children living with rare movement disorders.
Your donation will directly support ongoing research and help pave the way for treatments and breakthroughs that these children desperately need. Our community means the world to us, and we couldn’t take this journey without your love and support.
Please consider donating — every dollar makes a difference.
Thank you from the bottom of our hearts.
I’m fundraising to help Boston Children’s continue its amazing work for kids.
Every dollar I raise funds breakthrough research, family support, and vital services not covered by insurance. Your gift will:
- give children battling the most complex diseases treatments they can't find anywhere else;
- fuel 3,000+ researchers working to find answers;
- help patient-families in crisis with urgent needs, including housing, food, and clothing;
- and so much more.
And the hospital doesn't just stop there. Boston Children's truly understands the importance of training the next generation of top pediatricians and nurses, so they can continue to provide the best, most innovative care possible to kids.
Please support my fundraising, and help the kids and families at Boston Children’s!
Thanks to Those Who Have Donated So Far
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Why I fundraise for Boston Children's Hospital
Help Us Support Joey and Children Like Him
As many of you know, our sweet Joey was diagnosed with SPG50 — a rare, progressive neurodegenerative movement disorder . It’s a life-changing condition, and unfortunately, research on SPG50 is extremely limited.
We’re incredibly grateful to Boston Children’s Hospital, the only institution that has conducted research on Joey’s condition. Their support has given us hope, and now we’re asking for your help to keep that hope alive — not just for Joey, but for other children living with rare movement disorders.
Your donation will directly support ongoing research and help pave the way for treatments and breakthroughs that these children desperately need. Our community means the world to us, and we couldn’t take this journey without your love and support.
Please consider donating — every dollar makes a difference.
Thank you from the bottom of our hearts.
I’m fundraising to help Boston Children’s continue its amazing work for kids.
Every dollar I raise funds breakthrough research, family support, and vital services not covered by insurance. Your gift will:
- give children battling the most complex diseases treatments they can't find anywhere else;
- fuel 3,000+ researchers working to find answers;
- help patient-families in crisis with urgent needs, including housing, food, and clothing;
- and so much more.
And the hospital doesn't just stop there. Boston Children's truly understands the importance of training the next generation of top pediatricians and nurses, so they can continue to provide the best, most innovative care possible to kids.
Please support my fundraising, and help the kids and families at Boston Children’s!