Geared toward high schools and colleges, this yearlong, student-led fundraiser culminates in a day of dancing. Fundraising helps kids at your local Children's Miracle Network Hospital—Boston Children's (that's us!).
We are THRILLED to announce Evan’s 5th Annual Cycle for Heart on October 3rd after having to cancel the event in February 2021! The event is scheduled at JoyRide Westport for 4pm. In order to keep everyone safe the event will be held OUTDOORS on the stationary bikes!
Check out the new FORCE website:
Some big news to share, all thanks to your generosity and support these last few years!
While the majority of the country unfortunately had to press a pause button, Dr. Rathod made great progress on the Fontan Registry (FORCE), and created a one-of-a-kind Fontan clinic at Boston Children’s.
FORCE (Fontan Registry): Phase I and part of phase II goals have been met! The registry is on it’s way to being the largest in the world. At the end of July over 1,200 patients across 9 hospitals have been enrolled with over 2,100 CMR studies performed. However, there is still work to do. The goals for year 2, include, but are not limited to increasing CMR studies to 4,000 on 2,000 unique patients and train a robust machine learning network to process ventricular volumes, and expand from 9 hospitals to 23 hospitals.
Why is this important for kids like Evan?
The registry will use aggregated data from across the world to help doctors answer important questions which will enable them to act before a transplant is the only option left for the patient. This will be accomplished by creating the largest repository of Fontan clinical and imaging data in the world, all stored in a cloud, and shareable across hospitals. The real time data will then be analyzed to accelearte discovery. The registry will also leverage machine learning to predict outcomes and inverventions. Essentially, FORCE will be a crystal ball. It will allow doctors to predict which patients need help now, and how to get ahead of the problem before it is too big and too late.
Fontan Clinic: This clinic is so important for kids and adults like Evan, who have a Fontan anatomy, or half a heart. Individuals who have a special heart like Evan, not only worry about their hearts, but also their liver function, neurodevelopment, and nutrition. This clinic is a “one stop shop” for these patients. All of the doctors who work in this clinic will be knowledgeable about how a Fontan anatomy may affect other areas of the body. This will allow patients to get better care with nothing overlooked. Next year, Evan will be enrolled in the clinic at the age of 6. He will remain a patient at Boston Children’s for his lifetime as CHD’ers continue to be seen by pediatric hospitals.