Geared toward high schools and colleges, this yearlong, student-led fundraiser culminates in a day of dancing. Fundraising helps kids at your local Children's Miracle Network Hospital—Boston Children's (that's us!).
I am excited to announce that Ride4Claire 2.0 is official happening in 2021. I've got clearance from the tower and we're flipping things around this year. On the weekend of June 25-26th I will be seeing what its like to ride from Penn Yan, NY to Boston, MA this time. Riding many of the same amazing roads (in reverse) while adding a few new ones along the way. It will be 400+ miles of time to reflect on the past two years, to refresh from a hard year and half of covid WFH life and to bring awareness to a place that touches so many families every single day.
A massive thank you to all those who have supported the causes that Kait and I have championed over the last 2 years. By my estimation we all have raised over $40,000 for The Boston Children's Hospital!! It is truly amazing what a community can do.
I've included a slightly updated post from last year to give full context as to WHY I choose to #ride4claire.
All the Love,
-Matt, Kait and Claire
Two years ago my wife and I received what I have to imagine is some of the worst news that parents (first time or otherwise) can receive. At the age of 4 months our beautiful daughter Claire Elizabeth had been diagnosed with bilateral Retinoblastoma, which at its most simple is cancer within both of her eyes. It is a genetic mutation that happens in an extremely small amount of the population. Thanks to my mother in law and wife who spoke up at her 4 month checkup about one eye not quite tracking the same as the other our pediatrician took a closer look at here eyes and suggested to us that she have a consult with an eye specialist. We thought nothing more of this then our daughter might need glasses to ensure that her eyes were in proper alignment. Little did we know that at that appointment, while I was in the middle of Kansas about to race my bike would we learn that our daughter had a tumor in her eye. The following week when we took Claire back for her MRI we learned that it was not only one eye that had a tumor but both eyes had multiple tumors. If I am honest, Kait and I had gone into that visit to the hospital hoping and praying that it was just one tumor in one eye…or even that the first diagnosis was a mistake. However, when we received the news of multiple tumors in both eyes it was like a anvil had been dropped on our stomachs. At least that is how I felt.
That is how this started 2 years ago. Since we learned of the full extent of our daughters situation that day at Boston Children's Hospital we have been on a very specific path to giving Claire all the care that she needs. Almost immediately our primary doctor (Dr. Shaw) had our first procedure booked. We were introduced to the team at the Jimmy Fund who would be seeing over her chemotherapy treatments and literally we were off and running. I think within 2 days off her MRI we were back at Children's for an overnight visit to install her main-line port. What followed was 6 rounds of chemotherapy (1 per month) from June - November. We celebrated Claire's last day of Chemo with our amazing Jimmy Fund team sand since then her condition has been monitored by Dr. Shaw who each month completes a full eye exam under anesthesia to ensure that the tumors are under control. When Dr. Shaw completes his exams he is utilizing both laser and cryotherapy treatments to in my words "blast away or freeze off" any tumors that remain. Its certainly more complicated than that, but I think you get my point.
My wife and I cannot justly express the gratitude to those who have helped and supported us throughout the last two years. From our family, to our friends, to our coworkers and of course or tremendous teams at both The Jimmy Fund and The Boston Children's Hospital.