Geared toward high schools and colleges, this yearlong, student-led fundraiser culminates in a day of dancing. Fundraising helps kids at your local Children's Miracle Network Hospital—Boston Children's (that's us!).
May 16, 2019 our 4 year old, Kalea Rose, was diagnosed with Moyamoya Disease (a rare brain disease). Consistant with our fears, following a MRI, the neurologist called with the news that our "intuitions were correct". We took a deep breath, and trusted Dr. Smith's knowledge, expertise, experience, and abilities to lead us through Kalea's treatment. We've never looked back or doubted our choice of doctor or hospital.
Kalea's cousin was diagnosed 12 years ago with the same disease (he is currently being treated by Dr. Smith), and his family's fund raising inspired our event. Without their fund raising, genetic testing advances would not have been made, as well as several lives saved from procedures perfected from his funding.
Thankfully the surgery has helped, but unfortunately her fight has not. With any progressive disease without a cure, she will be continually dealing with its effects on her body. We're determined to pay forward the fundraising that has benefitted our daughter and so many others. We hope you'll join us as well!
We're hosting 3 fun virtual events.
1. Post a video or photo playing cornhole and tag @wickedcornhole and use #2020BrainGames to be entered to win prizes(on instagram or facebook)
2. Family Friendly Virtual Triva. October 18 @2:30pm