get active

create or join an athletic fundraising event.

Create an Athletic Fundraiser. get started

celebrate

raise money while celebrating a special occasion.

Fundraise Around a Special Occasion. get started

get fancy

galas to company gatherings, host an upscale event.

Host an event with Friends and Family get started

be creative

fundraise any way you want. Let your imagination run wild.

Let Your Imagination Run Wild. get started
team page image

Run for ESES Research

Team captain:

team page image

Run for ESES Research

Team captain:

0%

$1,740.50

raised

$1,000.00

goal

why we fundraise for Boston Children's Hospital

our team roster

Fundraise Your Way - Get Active

Run for ESES Research

TO DONATE NOW: Choose a team member from the list and click on their name to find the GIVE NOW button.

Our Goal

We are organizing our marathon a week in May - ‘Run for ESES Reasearch’ - to raise public awareness and research funds to help the doctors and researchers at Boston Children’s Hospital in America discover causes, cures, and treatments for ESES (Electrical Status during Slow Wave Sleep).  Every dollar raised supports ESES research and puts us one step closer to a cure.

CSWS (Continuous spike and Wave during Sleep) epilepsy, also referred to as ESES, is an uncommon epilepsy syndrome in which children lose a wide range of developmental abilities, including language, motor skills, memory, and visuospatial skills. In severe cases, the child may lose the ability to both walk and talk. Rarely, Sudden Unexpected Death in Epilepsy (SUDEP) may occur. This syndrome occurs in school-aged children and in many children there is no known cause of epilepsy. When children just lose language skills it is referred to as Landau-Kleffner Syndrome (LKS).  Early identification through a 24 hour EEG and treatment is critical to preserve their neuropsychological development.

Please support our fundraiser

Please make cheque donations payable to Boston Children's Hospital Trust and mail to:
Boston Children's Hospital Trust/ESES Research Fund
Community Fundraisers
Attn: Jessica Brandi
401 Park Drive, Suite 602
Boston, MA 02215

(Please write ‘Run for ESES Research, Louise Warman’ on both the cheque and envelope!)

Donations by Phone: 00 44 (857) 218-3129

Questions can be directed to the organiser, Mrs. Louise Warman 07977 507854

View More

Stay connected with us

Sign up for eNews to find out the
latest news, events, and announcements
for Boston Children's Hospital.

close