Our journey has a happy ending!
Funny story... we were scheduled for an induction on the morning of September 15, 2014. We got a phone call in the early morning hours from the hospital telling us they were very busy and could not accomodate our induction that morning, but they'd call us back around lunch time, when they may have quieted down a bit. Noon-time came around, and they were still too busy to take us. An hour or 2 later, my water broke ... I laughed and just hoped they would have a bed for me!
Julien had a quick arrival after my water broke. When he came out, it took a little extra effort for the doctor to get him to take his first breath, and for us to hear his cry. We thought it was because he was delivered so quickly that his lungs didn't get that good squeeze they needed on his way into the world; what we found out a little more than 24 hours later, was that his heart was not built correctly, and wasn't functioning well. When Julien was just over 24 hours old, they took him to the nursery for his routine tests and I took advantage of that time to take a "quick nap." Several hours later, around 1am, I was awoken by my nurse to call my husband back to the hostpital - my baby was in the Special Care Nursey after the nurse realized he looked dusky, and his oxygen saturations were low (65-75%). Tests were being done to rule out infection or lung problems, but...
"We believe there is something wrong with his heart."
In the early morning hours of 9/17/14, the Transport Team from Boston Children's Hospital arrived in their jumpsuits, preparing our innocent baby for the most unforgettbable experience of OUR lives (he tells me all the time "I just slept through it"). He was intubated, injected with prostaglandins to keep his PDA open, and strapped into an incubator for his first trip into the city.
Before lunch that day, we were seated in the NICU with our first Cardiologist as he explained our son had Transposition of the Great Arteries (TGA) with an atrial septal defect (hole in his heart). He would be prepped for his operation that afternoon and underwent a several hour open heart surgery, where he would be placed on bypass and receive blood transfusions. He was 2 days old. His heart the size of a walnut. I could hardly breathe.
Fortunately, surgery was a total success. Julien recovered quickly and we've been so fortunate to have unremarkable follow-up visits. We continue to see several doctors at BCH on a regular basis, but all-in-all, we are lucky.
We know that many families do not have the positive outcomes that we have had.
For all of these reasons, this is why we continue to fundraise and
Walk for Boston Children's Hospital.
I'm fundraising on behalf of Boston Children's Hospital because:
I BELIEVE no parent should experience the loss of a child.
I BELIEVE no sibling should have to watch their brother or sister suffer.
I BELIEVE that by investing in the best doctors and scientists we can save lives - today!
I BELIEVE that donations received before today helped a child I love and
I BELIEVE that every dollar I raise for Boston Children's Hospital will have a ripple effect and could be THE dollar that changes everything for a future family in crisis.
Please consider a donation to support my fundraising efforts... because I KNOW that when we band together WE WILL help fund Boston Children's exceptional care and groundbreaking research that can help every child.