I'm fundraising on behalf of Boston Children's Hospital because:
Without their tremendous care of this little superhero, my nephew Ayrton, would not be where is he today! After spending the first 333 days of life inpatient in the NICU and MSICU at Boston Children's Hospital. Ayrton has been home just over a year and thriving like most 2 year olds... walking, running, climbing stairs, and talking. He loves to dance, listen to music, read, smile, give kisses, being silly and being a social butterfly. If you're lucky Ayrton will blow a kiss your way.
Ayrton has what is called a giant "omphalocele", a rare abdominal wall defect where organs (liver, stomach, intestines) from the abdominal form outside in the umbilical cord, and is often associated with other birth defects. His (and his parents) fight began at 12week gestation when they learned of this scary and heart breaking new word at their first ultrasound. Thankfully, genetics testing cleared him of any chromosomal abnormalities.
In addition to his omphalocele diagnosis, Ayrton also has chronic lung disease and pulmonary hypoplasia, which requires him to be on 24/7 ventilation and oxygen. This added another layer of complications and countless days of uncertainties, heartaches and close calls the first 10 months of life.
Ayrton endured things that no baby should ever have to endure, but he never stops fighting, never stops conquering.
Ayrton had his omphalocele repair in July 2018, where he was paralyzed and heavily sedated for a month as they slowly "push" the organs in and "pull" the fascia (connective tissue) from his tummy so that they can close his abdominal muscle once everything settled in. It was a rough two months, but once again, Ayrton proved to everyone what a fighter he is. In October, he had surgery to put in a feeding tube since he doesn't eat orally and aspirates on thin liquid. We were told to expect a week long stay to recover. We only stayed the night and got discharged the next day. Who does that?!?!?!? This guy, that's who!
Ayrton could not be where he is today without the exceptional care, expertise and support of the wonderful team of doctors, nurses, therapists and staff at BCH. We are so grateful to simply to be able to let him experience normal day life and activities as an energetic two year old toddler at home.
I BELIEVE no parent should experience the loss of a child.
I BELIEVE no sibling should have to watch their brother or sister suffer.
I BELIEVE that by investing in the best doctors and scientists we can save lives - today!
I BELIEVE that donations received before today helped a child I love and
I BELIEVE that every dollar I raise for Boston Children's Hospital will have a ripple effect and could be THE dollar that changes everything for a future family in crisis.
Please consider a donation to support my fundraising efforts... because I KNOW that when we band together WE WILL help fund Boston Children's exceptional care and groundbreaking research that can help every child.