We are raising money to support Boston Children's Hospital on behalf of our son Chase, who was a patient here for the first few months of his life.
Our journey began after my 20-week pregnancy ultrasound, when we learned that Chase would be born with Clubfoot. CF is a congenital deformity that will require treatment for the first few years of his life, eventually allowing him walk normally and without pain. We are fortunate to have had access to the corrective treatment needed, and I learned that many children don't get proper treatment and suffer their entire lives. It was then that I made a promise to myself that I would fundraise for kids born with Clubfoot every year on "World Clubfoot Day".
Chase began treatment at 6 days old by having his legs casted. We began his weekly casts at a different clinic. The casts were heavy and extended from the top of his thigh all the way down to his toes. Each week the new cast would stretch his foot a little more towards the corrected position. On casting days, we had to soak his legs for an hour in vinegar water to soften the plaster then laboriously work at the cast to peel and cut it off. We did this so that we could feel his tiny newborn body against our chest for a few hours without the casts. Those 1-3 hours of cuddling were heaven. After about 4 weeks of casting, we began to have problems with the casts slipping and we were nervous that his feet were developing a complication. It was then that we called Boston Children's, and we had an appointment the following Monday.
Boston Children's casted differently- it was more specific and controlled, it was lighter, would peel off in 2 minutes and, after a few extra weeks of corrective casting, his foot was positioned in a way that would allow for the next necessary step- the surgical tenotomy (severed achilles tendon). We had appointments at 5:45am in Boston every week until Chase was 3 months old. The doctors worked long hours and started this shift this early so the that the parents could avoid the typical Boston traffic on a weekly basis. All of the "Clubfoot" babies were lined up and getting casted together, which was wonderfully supportive. Our first cast at Boston Children's was the first time that Chase didn't cry during the casting process.
When Chase had his tenotomy surgery, we had to hand our child over to the Boston Children's nurses and he was taken into another room. That was hard-- knowing that he would be awake for the procedure (with local anesthesia), and worried that he would feel pain without us there to comfort him. What made it easier was the incredibly caring nurses working at the hospital. The lead nurse reassured us that she was going to sing Christmas carols to him the whole time, and he ended up doing great with minimal discomfort in the days to following the surgery.
We are so grateful for the skill, excellence, and compassionate care that we received at Boston Children's Hospital. Even though our journey isn't yet complete, our son Chase is now walking and running around like a champ!
This year, we are fundraising on behalf of Boston Children's Hospital because:
I BELIEVE no parent should have to watch their child live with pain
I BELIEVE no sibling should have to watch their brother or sister suffer
I BELIEVE no parent should experience the loss of a child
I BELIEVE that by investing in doctors and scientists we can save Children's lives
I BELIEVE that donations received before today helped a child I love and
I BELIEVE that every dollar I raise for Boston Children's Hospital will have a ripple effect and could be THE dollar that changes everything for a future family in crisis.
Please consider a donation to support my fundraising efforts... because I KNOW that when we band together WE WILL help fund Boston Children's exceptional care and research that can help every child.