At 18 weeks in-utero, my husband and I were told our beautiful baby had several heart defects. We were referred to Boston Children's Hospital where our Cardiologists Dr David Harrild and Dr Ryan Williams confirmed our fears and advised us Nathaniel would need Open Heart Surgery shortly after birth. He was diagnosed with Tetralogy of Fallot with Pulmonary Atresia, an unroofed Coronary Sinus, Bilateral SVCs and a few other structural issues.
Our sweet Nathaniel James arrived 4 weeks early in July, but the teams at Brigham & Women's and Children's Hospital were prepared. Nathaniel was transferred 20 minutes after delivery to Children's Hospital, where he was immediately assessed.
On July 31st, day 3 of his life, Nathaniel underwent a PDA Stent Catheterization, performed by Dr Nicola Maschietto. He recovered inpatient for 7 days and we were sent home so Nathaniel could "bulk up" for the full repair in about 5 months time.
On his 22nd day of life, Nathaniel stopped breathing at our home. He was resuscitated by Daddy and we returned to Children's Hospital via the Critical Care Ambulatory Team. Nathaniel's heart was fully repaired September 4, 2019 at 5 weeks of age by Dr Christopher Baird.
To date, Nathaniel has had 4 admissions, 4 surgeries/procedures and we are currently working with the Pulmonary, Nephrology, Cardiology, Urology, Endocrinology, ORL, Genetic and Feeding Teams.
Nathaniel is the definition of resiliency and strength. And I'm proud to be his Mommy.
I could never, ever repay Children's Hospital for what they have done for my family. They are the reason I still get to hug and kiss my beautiful boy every day. I owe absolutely everything I have to Boston Children's Hospital and I’m honored to fundraise in support their research.