Boston Children’s Hospital NICU team was in the room when I delivered our son and quite literally stepped in to save Cameron’s life from the moment he was born.
Less than 24 hours after he was born Cam had a 7-hour surgery to correct his Esophageal Atresia and TE Fistula. 10 weeks later Cam required further intervention and had a 9-hour Tracheopexy surgery. This February Cam was unexpectedly admitted to the ICU at BCH and it was discovered that he had a congenital diaphragmatic hernia, essentially a large hole in his diaphragm that was causing his liver to push against his heart, in addition to a collapsed lung. He had a 5-hour surgery to repair this but it did not resolve his clinical status. Early March Cam was transferred to the Cardiac ICU after an 8-hour open heart surgery on bypass. After 6+ weeks in the ICU he was finally discharged home on April 1. His (hopefully) last major surgery I was with the neurosurgery team this May and he crushed it, per usual!
In Cam’s life he has spent 184 days inpatient at Boston Children’s Hospital; he has lived at BCH more days than at home. Their teams have supported our family as we navigated Cam’s medical complexities. Because of their expertise, dedication, and intervention Cam will go on to live a normal, healthy, long life.
#CamStrong
