My sweet boy has been a patient at Boston Children's Hospital since he was 6 months old. He is now 5, and he will always be a patient since there is no cure for his disease. He was diagnosed with Tuberous Sclerosis Complex, a rare genetic disease that causes benign tumors to grow in the brain, as well as several other areas of the body. He currently has them in his brain, heart, skin and kidneys. I haven't heard of this disease before until he was diagnosed.
We are very fortunate that we had the support and staff from BCH because today, my son remains stable. I'm participating in the Eversource Walk for Boston Children’s Hospital on June 9 to raise awareness of this rare genetic disease, as well as raise money to help support research and families.
Every dollar I raise funds breakthrough research and vital care and support services for sick kids and their families. Your gift will:
- give children battling the most complex diseases treatments they can’t find anywhere else;
- help children in your town and across the world get a second chance;
- fuel 3,600+ researchers working to find cures;
- fund hospital activities like art and music programs to bring patients joy and hasten healing;
- help patient-families in crisis with urgent needs, including housing, food and clothing;
- bring crucial care to families through not one, but four, outpatient psychiatry clinics;
- and so much more.
I would be extremely grateful for any and all support towards my fundraising goal. Help me help other families like mine.
