Our family will be walking this year in support of our son Ben! Ben has been followed by BCH since birth. This past year he received a genetic diagnosis of a rare disorder called Cohen Syndrome. His geneticist so compassionately explained all of this in the setting of a new pregnancy. This diagnosis helps us best understand Ben and his future.
Ben continues to be followed by Cardiology for his dilated aorta, the Developmental department for his safety needs, Hematology, the Communication Clinic, Opthamalothy, and ENT. We are so grateful for the comprehensive care he's received these past 4 years.
If you'd like to join us, we will be doing the 2 mile walk with a meet up at Cheers afterwards, where everyone knows your name!
Stephanie, Matt, Ben