I've joined the Miles for Miracles team in honor of my brave niece and Goddaughter, Maren Lee Schafer and the resilient kids at Boston Children's Hospital.
Maren was born August 16, 2017 with Waardenburg syndrome, a rare genetic syndrome that can cause hearing loss and changes in coloring (pigmentation) of the hair, skin, and eyes. Congenital from birth, Maren was impacted with severe-to-profound hearing loss leading her and her family to a long road ahead starting with the daunting hurdle of figuring out how to communicate and the choice to undergo a high risk surgery of bi-lateral cochlear implantation. In her 5 years, Maren has overcome many hurdles already and continues to make the daily strides to becoming socially and emotionally acclimated to her peers and the world around her. We are truly in awe of her every single day.
Every dollar I raise will fund the very best medical care, breakthrough research and vital support services for children like Maren, sick kids and their families. Your gift will:
- help children from your town and across the world get an equal and/or second chance at life;
- give kids battling the most complex diseases care they can't find anywhere else;
- fuel 3,000+ researchers working to develop new technologies, treatments and cures;
- support patient programs to let kids be kids, even during long hospital stays;
- help patient families in crisis with urgent needs
- deliver the most compassionate, leading-edge care to every child who needs it.
Please support my fundraising and help the incredible kids and families at Boston Children's Hospital.