Bennett Crowley was born with Esophageal Atresia / Tracheoesophageal Fistula, a rare birth defect where his esophagus formed with a gap in it and instead connected to his trachea. His severe airway issues caused him countless surgeries, made it impossible to eat through his mouth and made every breath a challenge. By some miracle, we lived close enough to Boston Children's Hospital and were able to transfer Bennett to their Esophageal and Airway Treatment Center, which we quickly learned was a world renowned program for the treatment he needed. The team at BCH pioneered techniques to reconnect the esophagus and stabilize the trachea to allow babies born with this defect to live long, healthy lives. Bennett was in the Children’s NICU until he was 7 months old, and the care he received by the NICU team as well as the support they gave us and his twin brother, Logan, was unbelievable and truly helped us through this experience.

Tragically, after what was supposed to be Bennett's final surgery before coming home, his heart stopped and we are still unsure why. Bennett’s team did everything in their power to help us figure out this mystery, but most importantly Bennett's story has helped improve care in the airway program and at the ICU at Children's to ensure this doesn't happen to future patients. 

Your support of the Bennett Crowley Fund will go towards training future surgeons, supporting families in this same position, and generally improving the Esophageal and Airway Treatment Center at BCH that has changed the lives of countless kids born with this defect from all over the world. 

We are so thankful to remember Bennett with this fund, knowing that his legacy will change the lives of kids like him in the future. Thank you for your generosity and love, and for helping us to honor his memory. 

With love,

Dewey, Grayson, Logan, Cooper and Wyatt Crowley