On April 28, I’ll join a community of more than 1,000 at the WIN Waste Field House for an inspirational day of yoga, music, and fundraising—all to bring lifesaving answers and hope to the sickest children from around the world.
I'm participating in Yoga Reaches Out for my son, Cullen. Cullen was diagnosed with Marfan Syndrome, a connective tissue disorder, 6 years ago. Boston Children’s Hospital has been invaluable for us in this journey - between genetics to diagnose him, cardiology for his annual echos and EKGs, and orthopedics to keep an eye on his ever changing physical form - his care team has helped us navigate this from the jump. We’ve spent countless hours with his doctors, trying to understand his future, as there is no cure and this is something he’ll live with his entire life. We are so very lucky to have access to the best doctors in the world.
- give children battling the most complex diseases treatments they can’t find anywhere else;
- help children in your town and those across the world get a second chance;
- fuel 3,600+ researchers working to find cures at the world’s leading pediatric research hospital;
- help patient-families (many of whom travel from far away to find answers) with urgent needs, including housing, food and clothing;
- bring crucial care to families through not one, but four outpatient psychiatry clinics;
- provide wellness services like Reiki, yoga and a safe place to simply exhale for families facing the stress of caring for a critically ill child;
- and so much more.